Van’s early months were filled with worry, sleepless nights, and endless appointments as his parents searched for answers.
Mom said, “Prior to starting care at PWC, Van struggled with breath holding spells that would result in syncope. He regularly woke up 8+ times a night in distress. We were in feeding therapy for dysphagia and physical therapy for torticollis and asymmetrical movement.
With all of Van’s struggles, we felt ignored. We were told he would outgrow the dysphagia and asymmetrical movement pattern, and regarding sleep, I was told to “stick him in a crib and walk away.” It was so hard to watch him struggle while knowing something was wrong, but not feeling heard.
Van had previously been in physical therapy, feeding therapy, and even chiropractic care at another office, but we didn’t notice any lasting changes. My first call with our PWC immediately felt different. The care advocates and doctors actually wanted to know my child—they see him as a person, not just another patient.
I thought the neurological scans were going to look worse! As the docs explained the areas of stress, it was easy to see how they connected to Van’s behaviors. Seeing changes in the scans alongside his physical progress has been life-changing.
Since day one of starting care at PWC, Van has not had a single breath-holding spell that resulted in a syncopal episode. Week-to-week, he made huge strides in physical therapy, even after being in a “rut” for so long.
Now, Van has officially graduated from both feeding and physical therapy. He drinks easily from open cups and simple straws, sleeps well, and is just so much happier overall. He lights up when he sees all his doctors and care advocates—he even climbs up to the table himself! As a parent, I have learned so much about supporting and advocating for him. Our PWC Docs have truly changed our lives, and they are my first call whenever Van isn’t feeling well. They have truly raised the bar for the care that I seek out for my child.”